Rapid response BMJ

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30 juni 2024

Op 7 juni verscheen in het BMJ een opiniestuk over patiënten met onbegrepen klachten (in de UK noemen ze die: MUS, Medical Unexplained Symptoms) door Tessa Richards.

De auteur heeft de Witte Raven gevraagd een ‘rapid response’ te schrijven waarin we uitleggen wat we op dit moment doen en wat onze ervaringen zijn.

Rapid response

Dear Editors,

The Forgotten Patients and Overlooked Diseases charity recently organised a multidisciplinary conference aimed at raising awareness and improving healthcare for patients with Medically Unexplained Symptoms (MUS). We would like to extend our sincere thanks to Tessa Richards for her insightful article on the complexity of MUS and for highlighting the need for supportive and compassionate doctors (1). We are particularly grateful for her mention and introduction of our expert group, the ‘Witte Raven’ (White Ravens). Here, we would like to shed additional light on our objectives and how we strive to help patients with unexplained symptoms.

Not “all in the mind”

In the quest to find a cause for “medically unexplained symptoms” patients need supportive doctors who don’t trivialise their problems, says Tessa Richards

Patients with persistent, severe, but medically unexplained physical symptoms baffle and frustrate doctors. Without a diagnosis they can’t be put on established disease pathways and it’s hard to know how best to manage them. Patients struggle with “unvalidated” illness and seek views from many different practitioners. Recently, a multidisciplinary group of clinicians and patients with an interest in “medically unexplained symptoms” (MUS) got together in London to shed light on a problem which deserves more attention than it gets.